News from Bioethics.com

Maggots, Amputations and Naked Thieves: Government Watchdog Details Hospice Deficiencies

3 months 1 week

(CNN) – Maggots growing around a dying man’s feeding tube. Staff failing to treat the wounds of a patient with Alzheimer’s disease, forcing the amputation of a leg. Caregivers unable to recognize injuries on a woman’s pelvic area as signs of sexual assault and repeatedly trying to insert a urinary catheter instead, sending the woman to a hospital. These are just a few of the graphic details revealed in two reports on US hospice care released Tuesday by the Office of Inspector General for the Department of Health and Human Services. More than 80% of end-of-life facilities in the United States had at least one deficiency, the report found, and more than 300 — about 18% — were poor performers with serious problems that jeopardized patient health and safety.

A Gruesome Case Study Points to the Hazards of Stem Cell Tourism

3 months 1 week

(Los Angeles Times) – Medical regulators have been warning that the downside of unproven stem cell treatments isn’t merely that they won’t work, but that they can be life-threatening. A team of Canadian physicians has just reported an especially gruesome example of what can go wrong when desperate patients chase after last-ditch cures in what’s known as stem cell tourism. Their subject is a 38-year-old Newfoundland man who became a paraplegic after a trampoline accident at the age of 20 injured his spinal column.

CDC Mad a Synthetic Ebola Virus to Test Treatments. It Worked

3 months 1 week

(STAT News) – Scientists at the Centers from Disease Control and Prevention have created a synthetic version of the Ebola virus circulating in the Democratic Republic of the Congo, part of an effort to determine whether diagnostic tests and experimental treatments being used in the field are effective. The research, conducted in the agency’s most secure laboratories — BSL4 — showed that even though the tests and two of the treatments being used in the field were developed based on earlier variation of Ebola viruses, they continue to be effective against the virus causing the current outbreak, the second largest on record.

‘Unmatched Wickedness’: Reports Allege Child Separation, Organ Harvesting Against China’s Muslims

3 months 1 week

(Religion News Services) – Two new reports conclude that China is engaging in organ harvesting and a child separation campaign against the country’s Uighur Muslim minority. China’s ambassador to the U.K., Liu Xiaoming, has denied a BBC investigation’s findings, which concluded that Muslim children in the Uighur-majority region of western Xinjiang are being systematically separated from their parents.

In US First, Baby Is Born from Dead Donor’s Transplanted Womb

3 months 1 week

(Medical Xpress) – The Cleveland Clinic says it has delivered the first baby in North America after a womb transplant from a dead donor.  Uterine transplants have enabled more than a dozen women to give birth, usually with wombs donated from a living donor such as a friend or relative. In December, doctors in Brazil reported the world’s first birth using a deceased donor’s womb.

Caregiver Depression Tied to More ER Visits for Dementia Patients

3 months 1 week

(Reuters) – Dementia patients may go to the emergency room more often when their caregivers are depressed, a recent study suggests. Researchers observed 663 dementia patients and their family caregivers – typically spouses, domestic partners or other relatives – for six months. At the start of the study, 84 caregivers, or almost 13%, had depression. Caregiver depression was associated with a 73% increase in emergency room use among dementia patients, researchers report in JAMA Neurology.

Ebola in DR Congo: Fear and Mistrust Stalk Battle to Halt Outbreak

3 months 1 week

(BBC) – There can be few greater challenges than tackling a lethal epidemic. But imagine trying to do so in a conflict zone ravaged by extreme poverty, insecurity and poor communications amid a population where health workers are feared and distrusted.  Yet that is the reality of Ebola in the east of the Democratic Republic of Congo, where more than 1,500 people have lost their lives from the virus in the past year.

With a Surge in Cases of Mysterious Polio-Like Condition, CDC Appeals to Doctors to Help Crack Case

3 months 1 week

(STAT News) – The Centers for Disease Control and Prevention on Tuesday appealed to doctors to rapidly report suspected cases of a mysterious ailment that afflicts young children, saying delays in identifying possible cases of acute flaccid myelitis, or AFM, are hindering the search for the condition’s cause. Every two years since 2014, a surge of the polio-like illnesses has struck a number of young children across the country, leaving them with weakened limbs. Efforts to find the cause of the phenomenon have pointed to viral infections as a possible culprit, but to date no one virus has been clearly implicated.

Half of Babies Affected by Zika Virus Are Developing Normally by Age 2

3 months 1 week

(New Scientist) – Among a group of about 200 babies born to mothers who had contracted Zika virus, about one third had developmental delays, but not all of them were lasting. About half of the babies with abnormal assessments early in their lives later tested normally on developmental tests around age 2 or 3. Karin Nielsen-Saines at the University of California, Los Angeles, and her colleagues tracked the development of babies born to women who contracted Zika virus in Rio de Janeiro, Brazil during the 2015-2016 epidemic.

U.S. Health Officials Record 14 New Cases of Measles as Outbreak Slows

3 months 1 week

(Reuters) – The United States recorded 14 new measles cases between June 27 and July 3, federal health officials said on Monday, signaling a slowdown in the spread of the disease that has infected 1,109 people this year in the worst U.S. outbreak since 1992. The U.S. Centers for Disease Control and Prevention (CDC) said it had seen a 1.3% increase in cases since the previous week and that it has recorded cases of the highly contagious and sometimes deadly disease in 28 states.

Teens Who Abuse Opioids Likely to Use Heroin, Study Says

3 months 1 week

(UPI) – New findings show teens who use opioids to get high are more likely to use heroin after high school. More than 13 percent of young people who currently use prescription opioids recreationally also used heroin after high school, according to a study published Monday in JAMA Pediatrics. But nearly 11 percent of those who stopped using prescription opioids recreationally also moved on to heroin after graduation. That’s compared to only 1.7 percent of teens who didn’t get high on opioids during high school school but still used heroin after graduation.

Nerve Surgery Helps People with Paralysis Control Their Hands and Arms

3 months 2 weeks

(New Scientist) – Surgeons have reanimated the hands and arms of people who are paralysed by connecting up working nerves to the injured ones, giving people the ability to use their phones, apply make-up and feed themselves again. The surgery is life-changing, says surgeon Natasha van Zyl at Austin Health, Australia. One of her patients is currently travelling in Europe, and another can now take his grandchild to the movies by himself – both are leading drastically more independent lives than either had before.

Why Are Menstruating Women in India Removing Their Wombs?

3 months 2 weeks

(BBC) – Periods have long been a taboo in the country, menstruating women are believed to be impure and are still excluded from social and religious events. In recent years, these archaic ideas have been increasingly challenged, especially by urban educated women. But two recent reports show that India’s very problematic relationship with menstruation continues. A vast majority of women, especially those from poor families, with no agency and no education, are forced to make choices that have long-term and irreversible impacts on their health and their lives. 

DR Congo Ebola Death Toll Exceeds 1,600 Mark

3 months 2 weeks

(Medical Xpress) – Deaths from an 11-month-old epidemic of Ebola in eastern DR Congo have crossed the 1,600 mark and a new fatality has been reported near the border with Uganda, the health ministry said on Friday. As of Thursday, the health authorities had recorded 2,382 cases of Ebola, of which 1,606 had been fatal, it said.

The Legal Limbo of Lost Embryos

3 months 2 weeks

(Vox) – Freezer failures may be a first-world problem, but they’re not innocent lapses or harmless errors. Even if biological kids weren’t a sure thing, most fertility patients had a real chance that the malfunctions erased. In every other area of medicine, that loss of chance is usually enough to justify proportional recovery for whatever potential loss or causal contribution can be traced to a health professional’s misconduct.

Acne’s Wonder Drug Is a Mental-Health Puzzle

3 months 2 weeks

(The Atlantic) – Meanwhile, a steady stream of research has continued to probe the question of whether isotretinoin causes depression and suicide. None of it has conclusively proved an answer. But a study published today in JAMA Dermatology contends that, for all the focus on these most dramatic side effects, dermatologists and psychiatrists might have overlooked other potential mental-health risks for patients taking the drug.

Attempt to Replicate Clinical Trials with Real-World Data Generates Real-World Criticism, Too

3 months 2 weeks

(STAT News) – It’s one of the most seductive ideas in medicine: that “real-world evidence,” including data from electronic health record systems and even records of insurance payouts, could replace the far more expensive and time-consuming studies currently considered the gold standard. The Food and Drug Administration is required, under the 21st Century Cures Act, to explore this idea. And late last month, New York private health care company Aetion published the findings of a study in which real-world evidence was used to try to replicate the results of a specific randomized, controlled clinical trial. Did it work? It depends on who you ask.

Liver Donations Seen Feasible After Assisted Suicide

3 months 2 weeks

(MedPage Today) – Just as organs harvested after a fatal drug overdose can often be safely transplanted, so may livers taken from individuals undergoing physician-assisted suicide, Belgian researchers reported in a JAMA research letter. In a retrospective single-center review, Diethard Monbaliu, MD, PhD, of University Hospitals Leuven in Belgium, and colleagues found the following 3-year outcomes for graft and patients’ overall survival, respectively, by type of donor death.

New Guidelines Aim to Enlist Primary Care Physicians in Transgender Case

3 months 2 weeks

(STAT News) – In a move that reflects a growing acceptance of transgender individuals in the U.S., the American College of Physicians on Monday issued its first guidelines on caring for transgender patients. This isn’t the first set of such guidelines. They go back at least 10 years, initially aimed at endocrinologists, the medical specialty to which transgender individuals were often referred. What is newsworthy about the new guidelines is the audience, “your critical mass of general internal medicine people who are primary care providers and also people who are family medicine doctors,” said Dr. Joshua Safer, professor of endocrinology and executive director of the Mount Sinai Center for Transgender Medicine and Surgery in New York City.

As Ebola Outbreak Rages, the World Just Watches. Some Call It ‘Malignant Neglect’

3 months 2 weeks

(Los Angeles Times) – The Ebola outbreak raging through Congo has sickened thousands of people and killed more than 1,500 — even as the number of new victims continues to climb. The situation is dire, but it’s hardly unprecedented. Less than five years ago, an epidemic in West Africa killed more than 11,000 people, shattering communities, destroying economies and leaving a generation of orphans behind. When it was over, world leaders took a solemn vow: Never again. Health officials studied the failures of their sluggish and haphazard response so they would recognize the warning signs of a crisis not to be ignored.

Scientists Make Model Embryos from Stem Cells to Study Key Steps in Human Development

3 months 2 weeks

(NPR) – Scientists have created living entities that resemble very primitive human embryos, the most advanced example of these structures yet created in a lab. The researchers hope these creations, made from human embryonic stem cells, will provide crucial new insights into human development and lead to new ways to treat infertility and prevent miscarriages, birth defects and many diseases. The researchers say this is the first time scientists have created living models of human embryos with three-dimensional structures.

The American Medical Association Is Taking a More Aggressive Approach on Abortion Legislation

3 months 2 weeks

(TIME) – The group, which represents all types of physicians in the U.S., has tended to stay on the sidelines of many controversial social issues, which, until recently, included abortion and contraception. Instead, it has focused on legislation affecting the practice and finances of large swaths of its membership. But, says AMA President Patrice Harris, the organization feels that, in light of new state laws in the U.S. that would force doctors who perform abortions to lie to patients—put “physicians in a place where we are required by law to commit an ethical violation”—it has no choice but to take a stand.

Mother of French Quadriplegic Brings Appeal to Keep Him Alive to U.N.

3 months 2 weeks

(Reuters) – The mother of a quadriplegic French man who has been in a vegetative state for more than a decade brought her case to the United Nations on Monday, seeking diplomatic pressure for maintaining his life support. France’s top court ruled last Friday that Vincent Lambert should be allowed to die. The Cour de Cassation overruled an appeals court which in May had ordered doctors to keep Vincent Lambert alive, just 12 hours after medics had already switched off the man’s life support against his parents’ will.

Kentucky Students Lose Appeal in Chickenpox Vaccination Case

3 months 2 weeks

(ABC News) – More than two dozen Catholic school students and their parents have lost their initial appeal in challenging a Kentucky health department’s efforts to control a chickenpox outbreak they claim infringed on their religious beliefs. A three-judge panel of the Kentucky Court of Appeals sided with a trial court judge who ruled in April that the Northern Kentucky Health Department acted within its authority.

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